Children and Young People's Autism/Disability Keyworker Consultation

The CCGs for Stoke-on-Trent and Staffordshire have been awarded funding to pilot a Community Keyworking programme for children and young people who are autistic, have a learning disability or both. 

The CCGs are keen that the support offered reflects the needs of these children, young people and families, and as the new support role will focus on those most at risk of an unplanned visit to hospital, this is the cohort of children and young people we particularly want to hear from.  We recognise that parents may want or need to support their children/young people to engage, however we really want to hear the voice of the child and/or young person coming through loud and clear.

SCVYS has been approached to manage this engagement and we are delighted after a period of development that we are now ready to launch it.  We are currently seeking delivery partners and have invited 24 local partners across Stoke-on-Trent and Staffordshire to consider an incentive scheme to enable them to support any children and young people in their current participant cohort to engage, if they feel unable to complete the survey independently.

We are collecting responses via a short online survey which should take no longer than 15-20 minutes to complete. Participants are also able to request a phone or video call if this improves their accessibility to the consultation from either SCVYS, or a partner organisation to enable them to complete the survey.  There is a bit more information available via the link, so feel free to take a look to see if any questions you may have are answered there.

The Survey link will be open until Sunday 18 April 2021, and then SCVYS will compile the responses and report back to the CCGs, local authority representatives and health partners. We are hopeful that some participants may wish to be part of the recruitment process too. When the report has been received and digested, we will produce a "You said, We Did" summary which will be sent back to all who are interested in hearing the difference their views have made in shaping the proposed Keyworker role.

We would be grateful if you can raise awareness of and promote this engagement in whichever ways are most appropriate to your organisation including potentially by sending it:

  • directly to those who are autistic, have a learning disability or both;
  • to those who are currently on the Dynamic Support Register - i.e those considered to be most at risk of an unplanned hospital visit;
  • directly to those who are in or have recently required Tier 4 support or;
  • to support teams and/or partner organisations who are working with this cohort through ongoing existing provision.